5.08.2024
5.07.2024
Parkinson's Diary, Episode Nine--Handicap Travels
We just got
back from a weeklong cruise to Bermuda, which began a few days after we got
back from Ireland. I thought I’d start with a Parkinson’s update; I will begin
with a report of how I fared on our recent trip to Scotland and Ireland:
Nirmala
and I just came back from a trip to Europe. The purpose of the trip, other than
having a good time, was to see if I could travel anymore. When we traveled to
Europe in May, our trip to Amsterdam and other places, people came to me and
said Sir, you need a wheelchair, sit down’ or you need a walker in the museum;
this was something completely new to me. I never had difficulty. I didn't
injure myself, I just couldn't walk anymore. When I came home. I went to a
mobility specialist who performed several tests and diagnosed me with
Parkinson's disease.
I have a
walking stick with me, which I used on the trip. I give myself a C minus or maybe even a C
plus. I kept up with the group as best I
could. The tour director knew that I had Parkinson's disease and slowed down a
bit. I am on medication now and can
tolerate walking a little bit better and I did keep up reasonably well. (This review for my blog was written by my wife and me.) One of the other issues
besides Parkinson's disease is that I'm just about legally blind and can't see
anything; it's very difficult for me to type. So she typed a lot of it.
We just
got back from a trip to New York and a cruise to Bermuda. We had a good time.
Again, I graded myself regarding mobility and sight; this time I give myself a
D or D+.
I was handicapped and was viewed as a
handicapped person by everyone on board. Regarding sight, I was walking along
with my cane one morning and walked full-force into a glass partition. Ouch! No
fun being nearly blind and suffering from Parkinson’s, I told a nearby person,
more as n excuse to hide my embarrassment. He offered to help me—so many were
so kind—but I told him all I needed was to find my wife, who was waiting for me
on the other side of the partition., (She continues to do a wonderful job of
dealing with me.)
On
another occasion during the cruise, I fell flat on my back while climbing
stairs after exiting a theater performance. People around me gasped; did I break
my hip? No, I didn’t; I rose quickly, (Nirmala noticed several bruises that
night.) I was, however, ok.
On still
another occasion, I fell in our room in the middle of the night and couldn’t
get up. Nirmala
helped me get up, but it took a long time.
I walked
about the ship with the help of a cane. I am definitely a handicapped person
now. My mood, however, is quite good.
4.21.2024
Born to Kvetch
On a recent visit to Amsterdam, (May, 2023), we visited the famous 1639 Portuguese synagogue, which still serves the Sephardic community of Amsterdam today. At the bookstore, Michael Wex's book on the Yiddish language, Born to Kvetch, leaped out to me. What a photo! Well, I had to purchase a copy. which proved to be a very good read.
You
see, although I don't wear a bowler hat and do not sport my forelocks in a
payes, I, too, was born to kvetch, no doubt about it. (Kvetch is a Yiddish word
meaning to complain. I noticed, months later, that the winning word in the
National Spelling bee was knaidel, dumpling, which was pronounced
in three syllables, The Yiddish kn is, however, monosyllabic.
Well, I would have won that spelling bee, along with the Indian youth who won
the prize. No surprises there, once I saw a comedy sketch in which an Indian
boy won first prize in Ebonics), but the youth who won the spelling bee apparently had no idea what the
word knaidel meant.
I
kvetch a lot. I sometimes feel quite inadequate, blaming myself for not helping
my fellow human beings enough. And I kvetch about being old and afflicted with
Parkinson's Disease; I torture myself that it might now be too late to
accomplish things I would like.
Dorsett,
stop complaining! You still can talk; you still can walk; you still can
write.
Yes,
you still can walk, albeit with a cane. Maybe a little gratitude will help
unkvetch the frown on your face when you just have to sit down. So I
decided to try it.
So
many things I take for granted. With a flip of a switch, day extends into the
night. With a flip of the wrist, I experience the benefits of indoor plumbing.
Though my handwriting has become unreadable, I can still tap words into my
computer. I have friends; I have acquaintances. Even more important, I have a
wonderful wife and a wonderful son. Though I don't see well at all, I am not
totally blind, and still can read with the help of large-print books.
I've reached old age, no longer dependent on a so-called living wage. As my
stepfather once said, any day that you're still breathing is a good day. Or as
a comedian once said, if you're not in the obituary, eat breakfast. I shall
with a smile.
Yeah,
right. I repeat: Dorsett, stop kvetching!
2.
For
our nature book club, we recently read a very good book, The Bird Way, by
Jennifer Ackermann. We learned that 'bird brain' is an unfair characterization
of the neurology of birds. The neurons are small, yes but they pack a
whallop. Birds are even theorized to start fires, so they can have easy access
to stampeding prey. Some species, such as turkey vultures, use their keen sense
of smell to locate carrion. Corvids and parrots are amazing problem-solvers.
The species variation is great, although it’s hard to agree with the alas! part of pigeons on the grass,
alas, alas—pigeons are not the brightest bulbs in the avian kingdom, although
they are far from simple.
Observing birds closely, I
decided I needed to add a bird house to my back yard. My son Philip purchased a
see-through bird house of clear plastic which I could attach to my window.
This allows us to watch birds eat the feed we have placed in the bird house. We got to
know a cardinal pair, (Cardinal Joseph and Sunyatta) and Morris the squirrel;
plus a host of many other birds.
As you might imagine, it
inspired me to write a poem, “The Diaphanous Bird House,” which follows:
John feels
he has seeds left to scatter
Before he
unmatters forever--
Soon, on
the snowside of the glass,
Scarlet
amazement appears.
The
cardinal takes what Crumplejohn offers:
A handful
of protein, caraways seeds.
A robin
alights; a squirrel approaches;
Red wings
soar skyward; John disappears.
John’s ego disappears at the amazing sight; for a while there is no border between the world and him. (I hope he doesn’t come across as being too ‘crumpled.’) John was ecstatic, that is, beside himself with joy. A good approximation about how I felt.
O the
glorious existence of nature, who is neither a he, she, or it. Existence
without ego is the garden of Eden, which is populated not only by birds, but by (sometimes) wise flightless beings, us—we sometimes come close to reality
and all of us can put in effort to come closer. But there is a catch.
Birds are
‘nervous,’ always on alert for potential predators. . If, say, a sparrow weren’t
alert and ready to fly away at the slightest hint of danger, from a perceived
threat to a warning call from fellow feathered creature, how long would the
sparrow survive? If a sparrow’s perennial alertness relaxed, you’d find more
satisfied raptors in the world than there actually are. Birds have to be always
alert; if not, there wouldn’t be any birds.
So here’s
another reason not to kvetch. Humans are no longer prey to other animals. We
don’t have to worry—the vast majority of us, at least—that a tiger or bear is
going to pounce and remove us from Earth as efficiently as an eagle with a
mouse in its talons.
So be thankful! And let me end with a final kvetch. Human beings prey on each other. homo homini lupusi man is wolf to ,man. (Which is an insult to wolves; wolves need to hunt to feed fellow wolves; their ‘evil’ is thus severely limited.
So be thankful that planes overhead contain passengers and not bombs. Be thankful and do what you can to bring peace to those areas where planes drop bombs.
So let me be very thankful for what we have. While it lasts. Stop kvetching and start helping~ Kvetching doesn’t do any good. I have, in my old age, still a lot to learn.
3.02.2024
Parkinson's Diary: Episode Seven, Another Progress Report
Yesterday,
I had an appointment with my neurologist/mobility physician who handles my
issues with Parkinson's Disease. I am doing well, although I definitely have
that ailment. He
increased my dosage of Sinemet, the mainstay in Parkinson treatment. This was a
four month follow-up.
I certainly
have problems with ambulation, but this is to be expected. My tremor is not a
big issue; it’s mostly on the left side. One of the main things that it affects is my
typing—this blog, for instance, has to be carefully edited and all those extra
z’s and s’s removed. My handwriting continues to be awful—being almost legally
blind doesn’t help. I’ve given up writing long-hand, since it is so difficult
to read my own writing that I have to recompose whatever I’m writing when I
try to enter it into a computer. Since vision is such a problem, I need to
dictate into the computer.
--Stop! A
significant new problem: the new dose of the Parkinson’s medicine. I took it
for a few days, and noticed a distinct improvement with my mobility issues. However,
a side effect soon became apparent. The medicine, Sinemet, is a combination of
carbidopa and leva dopa. The carbidopa helps the medicine pass through the blood
brain barrier into the brain. There it can enter the basal ganglia, the
mobility centers of the brain, and help motor function. Yet, I imagine, that
its effects on the brain aren’t limited to the basal ganglia. I began to be
confused. I still was aware of my surroundings, but the feeling bordered on
panic. Is this a side effect that would diminish with continued use of the drug? Perhaps, but the side effect was so great that I’d rather deal with reduced
mobility, at least for the time being. So I decided to take the increased
dosage at night, which, I presume, will help me get out of bed better in the
morning.—The medicine works, but if I can’t function, it’s best to stay seated!
….Well,I'm seate--again.
2.17.2024
R.I.P. Alexei Navalny
1.30.2024
What Parkinson's Has Taught Me
I slwalk,
yet still practice my art. (I can!
Can
I still travel with walker and cane?)
My secret
is happiness: I still love! I still
breathe! Yet
the knives
in my knees haven’t crippled my heart.
What a privilege
it is to be humble! What a privilege it is to believe.
Thomas Dorsett, Colombia, 2024
1.15.2024
A 'Terrible' Sonnet by Hopkins
My own heart let me more have pity on; let
Me live to my sad self hereafter kind,
Charitable; not live this tormented mind
With this tormented mind tormenting yet.
I cast for comfort that I can no more get
By groping round my comfortless, than blind
Eyes in their dark can day or thirst can find
Thirst's all-in-all in all a world of wet.
Soul, self; come, poor Jackself, I do advise
You, jaded, let be; call off thoughts awhile
Elsewhere; leave comfort root-room; let joy size
At God knows when to God knows what; whose smile
's not wrung, see you, unforseen times rather--as skies
Betweenpie mountains--lights a lovely mile.
In this poem, Hopkins gives himself good advice, which he unfortunately never heeded. Hopkins was, of course, very religious in the conventional sense; but he got, in my opinion at least, the message of religion only half-right. The commandment of all religions is to love one’s neighbor as oneself; attempting to love one’s neighbor while despising oneself is always misplaced. We can look at the great commandment then not as a commandment at all but as a statement of fact: One loves one’s neighbor only to the degree that one has love for oneself. Hopkins once wrote this beautiful line: “There lives the deepest freshness deep down things.” If one couldn’t find that deepest freshness deep down things in oneself, one wasn’t looking hard enough or was looking in the wrong direction.
It is well
known that Hopkins had a strong carnal nature. His sexual orientation was
basically homosexual. He once wrote that he decided not to become a painter or
sculptor because he would have to deal drawing naked men, which presumably caused him much
grief and even panic. He decided that
the only way for him to overcome his self-disgust was by giving himself up to
God--The god of the Catholic Church, which strictly forbade homosexuality and
masturbation.
We’ve learned
a lot since Victorian times. Homosexuality is no longer synonymous with sin for
the very reason that gays are able to love--one must agree with the current pope
that in this regard, “Who am I to judge?”
I do not
wish to psychoanalyze Hopkins’s sexuality here; I just present it as a potential
source of his self-disgust. That he was a very unhappy man and rejected
himself is obvious from reading his poems, especially his later poems, when
God didn’t deliver that which he expected: peace and joy. Obviously, you don’t
have to be gay to suffer from an animus against the self; family pathology,
peer rejection, and insistence in getting from the universe what the universe
is unable to deliver are other frequent causes of self-rejection.
Life is a rare phenomenon in the universe, advanced life even rarer. We have all won the lottery, as it were, and are incredibly
lucky to be alive. Most of us realize this; the genius Hopkins apparently did
not. Let us now turn our attention to Hopkins’s great sonnet and indicate why
his noble idea to be less hard on himself ultimately failed. Notice the obsession
with self; the poem begins with ‘My own heart.’ He admits that he is ‘comfortless' and finds
no way out from the hell he is in.
He refers to himself as 'poor Jackself’ who is 'sad' and ‘jaded’—not a good start. One gets the impression that Hopkins at this point in
his life saw himself as a mess and threw himself on the mercy of God for relief.
But God, for whatever reason, remained silent, which abetted Hopkins’s despair.
The poem ends with one of the most beautiful
images in all poetry. Hopkins acknowledges that joy does indeed come sometimes,
but it arises spontaneously. It ‘lights a lovely mile,’ as sunlight does when
breaking through clouds. Whenever I read
these lovely lines, I seem to see sun breaking through; a beautiful
image. That the clouds in his internal sky were largely self-caused, however, Hopkins
would have probably denied. Too, too bad.
One has no right to reject oneself. If you
share Hopkins’s despair, fight, fight, fight for your right for a happy life. (Humility and despair are polar opposites.) Remember what nuns and priests used to say, and perhaps still say, "God loves you just the way you are." Some of us moderns might say instead, "The universe accepts you just the way you are," not the way your ego insists how things should be.
A beautiful poem about a man who is stuck in a hell of his own making.




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